Autism Awareness Month: What my son can('t) eat - Day 3

A sample of some special made GF/CF Foods. They as exciting as they taste
*If you are new to this series, you may want to go back and read the previous posts:


What my son can('t) eat
What my son can('t) eat Day 2




In that last entry I shared a little about how my son, Noah did while on a GF/CF diet and today I am going to my best to express how HARD it is to be on one.

Having a child on a Gluten and Casein free diet requires an enormous amount of attention and effort. Not only do you have to study the labels on the food you buy, but you can't just look for the words Gluten or Casein on them. You also have to watch for these variations of the two:

* Abyssinian Hard (Wheat Triticum duran)
* Acidophilus milk
* Alcohol (Spirits - Specific Types)
* Artificial Butter flavor
* Aspartame (can cause IBS symptoms -Irritable Bowel Syndrome)
* Avena
* Baking Powder (verify ingredients)
* Baking Soda (verify ingredients)
* Barley



* Barley malt
* Barley Hordeum vulgare
* Beer
* Bleached All-purpose Flour
* Bouillon cubes or powder
* Bran
* Bulgur (Bulgur Wheat/Nuts)
* Butter
* Butter fat
* Butter flavoring
* Butter oil
* Buttermilk
* Bran
* Broth prepackaged
* Bulgur
* Calcium Caseinate
* Caramel Color
* Casein
* Caseinates
* Cheese
* Cheeses (hard and soft)
* Cereal extract
* Cereal Binding
* Chilton
* Chorizo (read label)
* Coffee creamer substitute (grain based)
* Cottage Cheese
* Couscous
* Cracker meal
* Cream
* Cream Cheese
* Cream Yogurt
* Croutons
* Custard
* Curds
* Delactosed whey
* Demineralized whey
* Dextrin**** see below
* Durum
* Edible Starch
* Einkorn Wheat
* Farina
* Filler

NONE of the following Flours:

* Barley flour
* Bleached All-Purpose Flour
* Bread Flour
* Brown Flour
* Durum flour
* Enriched Flour
* Gluten Flour
* Graham Flour
* Granary Flour
* High protein Flour
* High Gluten Flour
* High Protein Flour
* Oat Flour
* Wheat Flour
* White Flour
* Whole-Meal Flour
* Fu (dried wheat gluten )
* Galactose
* Germ
* Glutamate (Free)
* Glutamic Acid
* Gravy Cubes
* Gravy mixes (unless homemade with cornstarch)
* Ground Spices (some contain gluten)
* Gum Base
* Half & Half
* Hard Wheat
* Herbs with wheat fillers
* Hydrolysates: casein
* milk protein
* whey
* whey protein
* Hordeum
* Hydrolyzed oat starch
* Hydrolyzed Plant Protein (HPP)
* Hydrolyzed Vegetable Protein HVP
* Job's Tears (aka Pearl Barley)
* Kamut (Pasta wheat)
* Lactoglobulin
* Lactose
* Lactalbumin
* Lactalbumin phosphate
* Sodium lactylate (may or may not contain casein)
* Lacto globulin
* Lactose
* Lactulose
* Magnesium caseinate
* Malt
* Milk Protein

Ingredients which may contain milk protein flavorings:

* Caramel coloring
* Brown sugar flavoring
* Bavarian cream flavoring
* Coconut cream flavoring
* Natural chocolate flavoring

NO Milk or the following milk products:

* Milk derivatives:
* Milk powder
* Milk solids
* Malted milk
* Condensed milk
* Evaporated milk
* Dry milk
* Whole milk
* Low fat milk fat
* Nonfat milk
* Skim milk
* Goat's milk
* Milk cheese lactose
* Non-dairy creamer butter
* Pudding
* Rennet casein
* Sour Cream
* Sour cream solids
* Sour milk solids
* Whey in all forms
(including sweet, delactosed, protein concentrate)
Yogurt

Check Margarines (some are dairy free)

* A "D" on a label next to "K" or "U" indicates presence of milk protein
* Malt
* Malt Extract
* Malt Syrup
* Malt Flavoring
* Malt Vinegar
* Miso
* Modified Food Starch (source is either corn or wheat)
* MSG (Made outside USA)
* Mustard Powder (some contain gluten)
* Oats
* Pasta
* Pearl Barley
* Potassium Caseinate
* Rice Malt (contains barley or Koji)
* Rice Syrup (unless specified GF it contains barley enzymes)
* Rye
* Rye Semolina
* Sauce mixes (read labels carefully, often contain wheat)
* Seitan
* Semolina
* Semolina Triticum
* Scotch
* Shoyu (soy sauce)
* Small Spelt
* Soba Noodles
* Sodium Caseinate (contains MSG)
* Sodium lactylate (may or may not contain casein)
* Soy sauce (unless specified GF)
* Spirits (Specific Types)
* Spelt
* Spelt Triticum spelta
* Spices with wheat fillers
* Starch (outside USA)
* Stativa
* Stock Cubes (many contain GLUTEN)
* Strong Flour
* Suet in Packets
* Sulfites****see below
* Teriyaki Sauce
* Tritical
* Triticale X triticosecale
* Triticum
* Hard Triticum
* Udon ( wheat noodles)
* Vegetable Starch
* Vital Gluten
* Vitamins (some contain gluten)
* Vulgar
* Wheat
* Wheat bran
* Wheat Durum Triticum
* Wheat germ
* Wheat gluten
* Hard Wheat
* Wheat malt
* Wheat Nuts
* Wheat Oats
* Wheat Pasta
* Wheat starch
* Wheat Triticum aestivum
* Wheat Triticum mononoccum
* Whole Wheat Berries

The following labeled ingredients may indicate the presence of wheat protein:

* Gelatinized starch
* Natural flavoring
* Hydrolyzed vegetable protein
* Modified food starch
* Modified starch
* Check with company
* Whey (all forms Whey is dairy)
* Whey Protein concentrate
* Whey Sodium Caseinate
* White Grain Vinegar
* White Vinegar

WHEW! Exhausted yet? Try actually getting any shopping done! There are several books and websites available that provide recipes and safe food ideas but the problem that remains is that many of the substitute ingredients or special pre-made foods are crazy EXPENSIVE. The fix however, is simple if you enjoy cooking. You can easily buy and prepare fresh meats, fruits, and vegetables and be completely in the clear. It isn't glamorous or exciting and it certainly isn't quick or easy. So basically, this special diet isn't something any child will really enjoy or any parent will get away with corners on.

2 comments:

Anonymous said...

I always motivated by you, your views and attitude, again, appreciate for this nice post.

- Norman

Chase Roper said...

thanks!